Connect with the USH Community

created by families with Usher for families with Usher

Registration
  • Any field with an asterisk(*) is a required field.
  • You can register yourself or a family member.
  • To register yourself, please enter your contact information in the 'Name and Contact' and 'Address' sections.
  • To register another adult with Usher syndrome, please enter their contact information in the 'Name and Contact' and 'Address' sections. We only need information for the person who has Usher Syndrome.
  • To register a child, please enter the parent or guardian’s contact information in the 'Name and Contact' and 'Address' sections. In the Usher Syndrome Registrant section, click the check box for 'I am registering a minor' and enter the name of the minor in the dialog box that appears.
  • To register more than one child, you will need to create a new user account for each child. This is done intentionally so that children can eventually be transitioned to adults with their own record.
Name and Contact
Address

Street, P.O. box, c/o, company name, etc.

Apartment, suite, building, unit, floor, etc.
Usher Syndrome Registrant
Name of minor








Agreement

Security


(8 characters minimum)