Registry header trans

Connect with the USH Community

created by families with Usher for families with Usher

About Us

The Usher Syndrome Coalition is a registered 501(c)3 non-profit dedicated to supporting Usher syndrome researchers and families. The Coalition believes that the first step to finding viable treatments for Usher syndrome is the development of an Usher syndrome community. We are not a funding organization. We do not provide direct financial support to researchers. Instead, we strive to provide support to families and assistance to researchers. Connecting families and researchers is crucial to furthering our understanding of the disease, advancing research, and providing hope for the future.